Person and Family Workgroup

The application deadline is passed. For questions, please email info@bhcoe.org.

<-- BHCOE is creating a Person and Family Workgroup (PFW) to discuss issues related to the quality of healthcare people on the autism spectrum receive. We are looking for autistic people or people who currently or in the past have helped take care of someone on the autism spectrum. We hope this Person and Family Workgroup (PFW) will bring the critical patient perspective to quality projects BHCOE is developing.

Who Are We? Behavioral Health Center of Excellence (BHCOE) offers accreditation for organizations that provide Applied Behavior Analysis (ABA) services. Organizations seeking accreditation meet strict quality requirements. Our mission is to ensure that people receive the highest quality care possible. We are committed to improving the quality of ABA and ensuring autistic people make maximum progress in the areas that matter most to them. This is called person-centered care.

What Will We Do? BHCOE seeks to move the ABA field toward person-centered care. Right now, there isn’t any way to know whether ABA services are high or low quality, specific treatments are effective, or if people are experiencing the best outcome possible. People receiving services, caregivers, and providers are left with a lack of guidance for treatment planning and decision making. With your help, we will be able to develop quality measures that will help shine a light on the quality of care being delivered to people on the autism spectrum.

During the first year, this PFW will share their insights on several quality areas, including:

  • Defining ABA quality
  • Quality measure development
  • Patient-reported outcomes

Why a Person and Family Workgroup (PFW)? Because your voice matters! BHCOE understands that patients and their caregivers have a unique perspective on the healthcare they are receiving. Your personal experiences give you expertise we do not have. The truth is, we can’t do it without you. BHCOE is pulling together the PFW to make sure your essential perspective is at the table during this groundbreaking work.

The PFW will include 6-8 people at least 18 years old that are autistic or who care for someone on the autism spectrum (currently or in the past), who will serve as members for 12 months. We expect to have 4-6 PFW meetings during 2021. Each meeting will be between 1.5 – 2 hours. Members will be expected to review meeting materials provided by BHCOE, before each meeting.

These meetings will be run with a lot of flexibility in terms of how members can contribute. We will be engaging in discussion, and encourage members to speak up in the moment, but we also recognize that some people may prefer to think things through and send thoughts later via email. We will be sending out meeting summaries after each meeting. The meetings will utilize zoom chat features as well as surveys/polls during the meetings to support those that feel more comfortable with written feedback/input, compared to verbal. Also, if people do not feel comfortable having their cameras on throughout the meeting, they’re welcome to turn off their cameras and/or remain muted. Our goal is to create a comfortable, informal environment while also encouraging meaningful discussion where each member’s voice can be heard.

Completing an application for the workgroup simply requires providing some basic background information and will register your interest in being a member.

*In response to the autism community we will be using both identity first and person first language throughout our communication.

The application deadline is Friday, March 12th, 2021. –>

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